6 years ago I became a quadruple amputee, losing my lower legs and my hands because of anaphylactic shock and septic shock. I now celebrate my new life by dressing in my own unique style and showing that we are no different. I embrace my new life by showing others that we are resilient and strong! I share my story to spread awareness about disability and the importance of recognizing the early signs of sepsis to save lives and limbs. Becoming an amputee has changed my life in so many ways! It has given me a gift that allows me to use my voice and my story to help others. I am proud to be thriving in my new life as an amputee.
You don’t want to miss this. The 2023 National Conference will take place at the Renaissance Orlando at SeaWorld Hotel, August 2 – 5, 2023. Make sure to register soon to take advantage of the discounted Early Bird registration rates:
|Registration Type||Early Bird||Advanced||Regular|
|November 1 – January 31||February 1 – May 1||May 2 – August 5|
|Full Conference – Individual with Limb Loss||299||349||399|
|Full Conference – Family Member||199||249||299|
|Full Conference – Professional||449||499||549|
|Children/Youth (17 and under)||29||79||129|
|Student (with ID)||99||149||199|
|Additional Exhibitor Booth Staff (exhibit hall only)||125||150||175|
|Additional Exhibitor Booth Staff (full conference registration)||199||249||299|
For more information about the National Conference, go to National Conference – Amputee Coalition (amputee-coalition.org). For any questions, contact the Events Team at email@example.com.
We look forward to seeing you next year in Orlando, Florida.
Learn how you can get involved in advocacy with the Amputee Coalition to make a difference for people living with limb loss and limb difference. We’ll be talking about our advocacy campaigns and how you can be an advocate with us! There will also be time for you to connect with other advocates from all over the country.
Once you RSVP, the Zoom link for the call will be emailed to you automatically. This call will be recorded and a link to the recording will be sent out to everyone who registers.
Whether you’re new to advocacy and want to learn how to get involved or you’re an Amputee Coalition Lead Advocate looking for the latest campaign updates, this call is for you.
We hope you can join us!
RSVP at the button above or at www.amputee-coalition.org/alladvocatecall
My Diagnosis Story from 9 1/2 Months Old
My family would never have known that their life, and my life would change in just three and a half weeks. I was nine and a half months old when I became fatally sick. My 3 ½ week hospitalization would begin in the Pediatric Intensive Care Unit, Room 770, bed 1, and lives would change forever. When I got to the hospital, the attending physicians realized that I was lethargic and concluded that I may have been dehydrated and septic. An x-ray showed that I needed a chest tube. I still have the scar. An Endocrinologist came in, examined me, and found that it was Type 1 Diabetes because my blood sugar was 1100, one thousand times the normal result. I was the youngest patient out of everyone my doctors could find that was so young with diabetes. And because there was no genetic linkage with my parents’ family and diabetes, I was considered a statistic. I had a team of doctors 24 hours a day, 7 days a week. I was hooked up to so many IV bags, they had to be spread out on both sides of my hospital crib. I was intubated and had to have a foley catheter in place. Also, doctors had a hard time looking for an open vein that would go straight to my heart due to a cardiovascular collapse that I had. Therefore, an Anesthesiologist inserted a right jugular line, which is an I.V Line through a large vein in the right side of my neck. I still have the scar. My grandmother worked at the same hospital I was a patient in, so she and her co-workers would come and check on me whenever possible. My uncle also worked at the same hospital as a security guard and would come visit me too. My parents stayed with me 24 hours a day, 7 days a week. My condition seemed to get worse because 3 days later, my mom noticed a black stripe on my right leg. She went on to ask my grandmother about it, and then the doctors. It turned out that my right leg was beginning to lose life and pulses were becoming weak, not only that, but my left toe was also starting to turn a gangrene color. The doctors concluded that I had a blood clot that was causing my leg to look discolored because of the lack of circulation. The next day, the attending surgeon performed a procedure where he would inject a medication called Streptokinase that was supposed to remove my clot. Well, something happened because my grandmother told me this, “When you were coming back from the Operating Room (OR), the registered nurse on duty, who was someone I knew, told me she was so scared. I asked her why. She said, ‘Alexus coded (heart flat-lined), and she had to be resuscitated. I thought she wasn’t going to make it.’ My grandmother said I had died. I eventually went into a 3 1/2-hour coma. When I woke up, my grandmother said my leg looked like black leather above the knee. I had my amputation on 07/30/1992. My grandmother’s co-workers and people from other departments lined up and down the halls to provide my family with moral support. My grandmother described it as truly incredible. Someone from my grandmother’s church came and prayed over me with oil. During the surgery, the OR staff could see I was fighting to live. I was admitted on 07/22/1992 and discharged on 08/13/1992. With what happened to me, my dad describes it as crazy, traumatic, and unreal. He told me it was like a movie, a nightmare. My mom said it was like being in hell. She felt like there was no one to talk to because her family was in Colombia. I’m happy I’m alive to share my story with others, and I credit that to my Heavenly Father.
Strong2Finish 2 Tim 4:7
In 2018 my life changed forever. I became an ABK (above-knee amputee) on my left leg due to a flesh-eating bacteria caused by a wound that the doctor didn’t care for. I have come a long way and I am very blessed to be in the amputee community. I have been and still am writing my story in a WordPress blog. If you look up Strong2Finish 2 Tim 4:7 you will find it.
I came across that verse during rehab, and it stuck with me and became my motto. I have finished the race and I have kept the faith.
To me it means I am still here, I faced a terrible loss, but I am still here to tell my story.